Noninvasive ventilation (NIV) utilized |
Noninvasive ventilation (NIV) utilized |
|
|
Noninvasive ventilation (NIV) utilized |
Loss of speech |
Loss of speech |
|
|
Loss of speech |
Loss of ambulation |
Loss of ambulation |
|
|
Loss of ambulation |
Percutaneous endoscopic gastrostomy (PEG)/feeding tube placement |
Percutaneous endoscopic gastrostomy (PEG)/feeding tube placement |
|
|
Percutaneous endoscopic gastrostomy (PEG)/feeding tube placement |
Tracheostomy performed |
Tracheostomy performed |
|
|
Tracheostomy performed |
Death |
Death |
|
|
Death |
Walk by 17 months old |
Walk by 17 months old |
|
|
Walk by 17 months old |
Speak his/her first words by 12 months |
Speak his/her first words by 12 months |
|
|
Speak his/her first words by 12 months |
Speak in two word combinations by 2 years |
Speak in two word combinations by 2 years |
|
|
Speak in two word combinations by 2 years |
Speak in complete sentences by 3 years |
Speak in complete sentences by 3 years |
|
|
Speak in complete sentences by 3 years |
Have a cognitive/learning disability |
Have a cognitive/learning disability |
|
|
Have a cognitive/learning disability |
Attend a day care group (with > 5 other children) |
Attend a day care group (with > 5 other children) |
|
|
Attend a day care group (with > 5 other children) |
Head control |
Head control |
|
|
Head control |
Raise both arms above head simultaneously |
Raise both arms above head simultaneously |
|
|
Raise both arms above head simultaneously |
Roll completely |
Roll completely |
|
|
Roll completely |
Maintain seated position supported |
Maintain seated position supported |
|
|
Maintain seated position supported |
Maintain seated position unsupported |
Maintain seated position unsupported |
|
|
Maintain seated position unsupported |
Crawl- combat style |
Crawl- combat style |
|
|
Crawl- combat style |
Crawl- four point |
Crawl- four point |
|
|
Crawl- four point |
Stand with support |
Stand with support |
|
|
Stand with support |
Cruise along furniture |
Cruise along furniture |
|
|
Cruise along furniture |
Stand without support |
Stand without support |
|
|
Stand without support |
Walk with support (hand, braces) |
Walk with support (hand, braces) |
|
|
Walk with support (hand, braces) |
Walk independently (without braces) |
Walk independently (without braces) |
|
|
Walk independently (without braces) |
Climb stairs |
Climb stairs |
|
|
Climb stairs |
Roll both ways |
Roll both ways |
|
|
Roll both ways |
Walk with hand held or assistive device |
Walk with hand held or assistive device |
|
|
Walk with hand held or assistive device |
Walk alone (without assistive device) |
Walk alone (without assistive device) |
|
|
Walk alone (without assistive device) |
Reaches for object |
Reaches for object |
|
|
Reaches for object |
Self feeds |
Self feeds |
|
|
Self feeds |
Uses spoon |
Uses spoon |
|
|
Uses spoon |