• Rare Disease Family History
• Physical Functioning
• Participant Current Trial Participation
• Participant Existing Biospecimen
• Record of Self Completion
• Year of Death
• Ethnicity of Participant
• Participant Street Address
• Participant Email Address
• Registrar
• Rare Disease Diagnostic Testing
• General Health
• Participant Future Biospecimen Donation
• Location of biospecimen donation
• Last Name of Participant
• City, Town or Village of Birth
• Number of Live Births
• Participant Age for Weight
• Current Medications
• Source Registry